This is a letter that I am currently sending to any media outlet who will listen. It's pretty self-explanatory.
To whom it may concern:
On September 22, 2010, I tuned into NBC for the highly anticipated season premiere of Law & Order: SVU. Imagine my surprise when I began to view a show that fights for the rights of the violated and had to watch as my children and I were the ones victimized.
In the episode, “Bullseye,” a character was featured with a severe mental disability who, because of his disability, had urinated in public and subsequently had been placed on the sex offender registry. When his speech became vulgar as he talked to the detectives, his mother asked for forgiveness. She explained that he didn’t know any better because he has Noonan Syndrome.
I am to assume that you have no experience or knowledge concerning Noonan Syndrome (NS). Most do not. You have no idea what it is like to speak to friends, neighbors, teachers, and even medical professionals who have never even heard of NS. They have to be told that NS is characterized by short stature, delayed puberty, specific facial features, bleeding tendencies and most importantly, heart conditions. They also have to be told that NS very rarely affects cognitive function.
I have longed to raise awareness for Noonan Syndrome, to give it national recognition. Being labeled as having a “syndrome” brings with it the unfortunate stigma of stereotypes and assumptions, fueled by the ignorance of others. On Wednesday, September 22, over eight million people tuned into NBC and heard the words, “Noonan Syndrome,” for the first time. Those eight million people watched a character whose portrayal of one with NS was so exaggerated, so grossly inaccurate, it was offensive to those of us who do have Noonan Syndrome.
I have Noonan Syndrome. Both of my children have Noonan Syndrome. We have a mutation of the PTPN11 gene, the gene mutation that accounts for over 50% of the documented cases of NS. I would like to make clear that I did not find your portrayal of NS offensive because it implied a cognitive disability. I am offended because the portrayal was incorrect and you randomly chose a disorder without doing any research, not realizing the damage that could do. If you had made the character look younger than his age, be significantly smaller than his peers, or have a heart defect, at least you would have been on the right track. But, the large bulky man who attempted to fight two detectives, had none of the qualities of one with NS.
It is too late to ask for an apology or any kind of redemption. What I do ask, is that in the future you do better research when tackling the responsibility of portraying a disability or disorder in the media.
My children are much smaller than other children their age and look a little different. They have bleeding disorders associated with NS and they both have heart defects. They have been hospitalized more than once for their issues and are extremely brave. I can only hope that as they get older, they never see the Law & Order: SVU episode, “Bullseye.” I hope that they never see what NBC thinks personifies Noonan Syndrome. I hope that they will never see one of the seeds that was planted to contribute to the stereotypes, assumptions, and adversities that they will eventually have to face. Fortunately, they will never see it in my home, as I have watched Law & Order: SVU, for the last time.
Thank you,
Anna Corbin
